Archives For My Health Record

The deadline for you to opt out of the government’s ill advised national health record system is rapidly approaching, and for the record yes I have opted out. I’ll give you a concrete example of what I’m talking about when I say ‘ill advised’, currently it’s assumed that you’ll be OK to share your anonymised medical data for research purposes by setting sharing it as a default. This is despite it being shown time and time again that the anonymisation of such data just doesn’t work. You might share my concerns about this lack of concern and level of indifference to the idea of informed consent. What the agencies of the state clearly don’t get is that this this information belongs to you and I, it doesn’t belong to my doctor, your medical data is yours your doctor holds it in trust for you. And until the state demonstrates a clear and unequivocal understanding of that point I say no thanks and I’d invite you all to do the same. My Health Record? Not so much.

PS. The architect of My Health Record is Tim Kelsey, yes that same Tim Kelsey who presided over the UK Government’s Care.data, program which tanked over sharing data without explicit consent. And unfortunately for us that attitude is baked into My Health Record’s DNA.

PPS. To me the carelessness of of the government in this whole affair is indicative of the increasingly totalitarian relationship between the government and the people.